The purpose of our research volunteer registry is to collect and maintain information about you so that we may contact you for future research studies when it appears that you may be eligible based on the information you give us.

• Information you provide for the registry will be kept on a highly secured server at Duke University Medical Center.
• Only authorized DCRU staff will be able to access your information.
• Your name and any other information you provide will not be shared with unauthorized person(s).
• The information in this registry may be reviewed by auditors to ensure that it meets federal and state patient safety and privacy regulations.
• Reviewers may include members of the Duke University Health System Institutional Review Board or regulators from the federal Food and Drug Administration.
• Your participation in the volunteer registry is entirely voluntary. The information you provide for the registry will be kept indefinitely.
• However, if you decide you are no longer interested in being contacted for future studies, you may withdraw your participation at any time by either of the following means:
• Call the Recruitment Team at 919-613-6244
• Email the recruitment team at dcrurecruit@duke.edu
• If you choose to withdraw your participation, you will be removed from the pool of people whom we may contact and your withdrawal will have no effect on your status as a Duke patient, employee, student, or volunteer.

Participation in the research volunteer registry may benefit you if you are interested in participating in upcoming research studies. The registry will help us contact you about a study for which we think you may choose to participate. Please note that you might not receive a benefit from participation. It is possible that there may not be a research study available at the DCRU that you will be eligible for, or there may not be a study that you are interested in participating in. Maintaining the safety and security of your information is our top priority and every effort will be made to keep your information confidential, but we cannot make a guarantee against potential breaches of electronic information.